How the NHS communicated with people

Developing ongoing relationships with people in order to empower them to take control, share ideas for development and make us all accountable for what we do

www.patientvoices.org.uk

www.patientvoices.org.uk

- run letters, leaflets etc. by the Plain English Campaign. If communication cannot be understood by the most vulnerable they increase health inequalities by making services more difficult to access - e.g. choose & book.

Making sure people who need them have professional interpreters - and that they are booked through the health service

Supporting services providers to be more confident and skilled in working with vulnerable groups - signposting information , access to networks and support, how to use interpreters, how to work in partnership.

[submitted at #expo14nhs]

Provide a validated national training programme at foundation/hon degree to empower patients/lay-representatives to have knowledge skills & confidence to sit around the table with managers & consultants & to say "patient in the room, you have got it wrong. Lay representatives see things from a different perspective & presently training in silos & needs to be expanded to encompass governance, finance, accountability and general strategic issues in delivering a successful patient centered service

How can we engage and involve local communities in local health care decisions

Make sure Create multiple channels to engage: i.e. leaves the person/family feeling more connected, more confident in leading their own care and sustaining healthy lifestyles

Getting young people's feedback on the services that the NHS provides! Like on Facebook: NHS England Youth Forum On Twitter: #NHSYF

Patients need relevant information, at the right time, using the right media. Keep it simple

Create multiple channel comms to enable people to engage in a way that suits them

My father, Ralph Winstanley, who had not been dying was 'helped to die' against his will, at his home in Doncaster nearly 10 years ago. The NHS acted to close discussion.. and to denigrate us for asking for a full enquiry. As his blood family, we suffered and gathered documents over a decade,which clearly prove that he had not been dying, that he was set up by his next-of-kin to be killed, who set that up, how that person drove the killing over a 6 day period. Is that why we pay into the NHS?.

We need corporate and personal accountability at Board and Governing Body level first of all. Without that there can be no filter down to the rest of the employees.. and no improvement. We also need a far greater government and personal accountability.

We should ensure people can make meaningful decisions about their treatment and care. This includes considering dynamics between people and professional, technological (informatics) and medical (geonomics progress). Relationships between the consumer and professionals is changing and some professionals still don't feel comfortable with interpreting data or allowing us to make the call about how we are supported or the treatment we want. There are increasingly also new technologies (i.e. Apps) that enable us to be supported remotely (e-consultation) and could help us plan our lifestyle for the future. What would this relationship between professionals and the consumer look like?

We currently have little corporate accountability within the NHS generally or within particular local organisations. Without full corporate accountability every hope for a fair future from the NHS will fail. No Board or Governing Body Member should act as a passenger, taking no accountability for the general actions of the group. We need full corporate accountability from every person whom we (handsomely) pay from our public funds. No 'moving on up the NHS spiral should be allowed, where a mess has been made of the currently paid position. Instead, we should make a full public inquiry and if necessary take Court action so that individuals who have not served us well, will never again be allowed to work within our publicly funded organisations. We need hard-working, trustworthy individuals to lead our public NHS. We also need to row back on the very large numbers of legal departments which take money away from health and only operate as cover-up agents for the wrongs done to individual members of society, by those whose organising skills, compassion and humanity are not adequate. We should not be paying for 'inadequate' nor for 'cover-up'. Who agrees with this? If you agree, please have your say. If you disagree please say why. This is a matter which will not wait.